Papa Ola Lōkahi, in partnership with ‘Ahahui o nā Kauka, Association of Native Hawaiian Physicians, has embarked on an campaign to raise awareness of issues around Hawaiian involvement in genetic and genomic research for medical purposes. We have begun by introducing a series of presentations on Hawaiian Genomics in the fall of 2020, and we are providing a reading list below.  Eventually, we will be reaching out to Hawaiian communities for guidance.  Meanwhile, check back here regularly to catch up on the resources so that you and yours are able to make informed recommendations.

Ola Hawai'i presents Emerging Research in Hawaiian Health & Well-Being

Part 4:  State of the Field

June 12, 2021, 1:00 PM HST

Recording

Part 3:  Current Genomics

November 21, 2020, 4:00 PM HST

Evaluation

Recording

Part 2:  Ancient Genomics

October 23, 2020, Friday, 6:00 PM HST

Recording (FB)

Hawaiian Genomics 101

October 10, 2020, Saturday, 4:00 PM HST

Evaluation

Recording 

Presentations

• Why genetic research must be more diverse, Keolu Fox.  July 15, 2016
• Driving Change:  Priming the Navajo Nation Genetic Research Development, Jamie Henio, Walter Phelps and Frank Sage.  June 26, 2019
• Indigenizing Genomics - Enhancing genomic research through an indigenous perspective. NCAI Science and Sovereignty.  June 29, 2016
• Biospecimens and Data Sharing Considerations for Native Peoples.  Nanibaa A. Garrison.  June 28, 2015
• Native Peoples and Genetic Research 14:  Keolu Fox.  July 22, 2014

Reading List

• National Indian Health Board (2020).  To Call Upon the NIH to Consult with Tribal Nations and Establish Policies and Guidance for Tribal Oversight of Data on Tribal Citizens Enrolled in the All Of Us Research Program.  NIHB Resolution 20-04.
• Fox, K (2020) The Illusion of Inclusion -- The "All Of Us"  Research Program and Indigeous Peoples' DNA. New England Journal of Medicine 383 (5): 411–13.
• Garrison NA, Hudson M, Ballantyne LL, Garba I, Martinez A, Taualii M, et al. (2019).  Genomic Research Through an Indigenous Lens:  Understanding the Expectations.  Annual Review of Genomics and Human Genetics 20:495-517.
• Fox K, Hawks J (2019).  Using ancient remains more wisely.  Nature 572, 581-583.
• Kaiser, J (2019). Native American groups wary of big US biobank.  Science 364(6443): 812-813.
• Guglielmi, G (2019). Facing up to injustice in genome science. Nature 568(7752), 290–293.  
• Claw KG, Anderson MZ, Begay RL, Tsosie KS, Fox K, Garrison NA et al. (2018). A framework for enhancing ethical genomic research with Indigenour communities.  Nature Communications 9, 2957.
• Lindo J, Herta-Sanchez E, Nakagome S, Rasmussen M, Petzelt B et al. (2016). A time transect ox exomes from a Native American population before and after European contact.  Nature Communications  7, 13175.
• NCAI Policy Research Center (2012).  American Indian and Alaska Native Genetics Research Resource Guide: Tools for Tribal Leaders and Citizens. 
• Taualii M, Davis EL, Braun KL, Tsark JU, Brown N, Hudson M, Burke W (2014).  Native Hawaiian Views on Biobanking.  Journal of Cancer Education 29(3): 570-576.
• Ka 'Aha Pono (2005) Paoakalani Declaration.
• Fong M, Braun KL, Chang RM (2004).  Native Hawaiian preferences for informed consent and disclosure of results from research using stored biological specimens.  Pacific Health Dialog 11(2): 154-9.

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Alexander Friedenburg Ka‘ōhiai Ka‘ōnohi, 1905-1960, was a naturopathic physician, pharmacist and botanist descended from a long line of Hawaiian healers.  He was a pioneer in integrating western and traditional practices into his daily healing work.

Alexander was born April 24, 1905 to James Ka‘ōhiai Ka‘ōnohi and Minnie ‘Awa‘awa Friedenburg. His grandfathers and great-grandfathers were herbal medicine practitioners

His obituary claims he was the only licensed Hawaiian drugless physician in Hawai‘i when he opened up his new clinic, Ka‘ōnohi Naturopathic Clinic, on the corner of Castle and Kapāhulu streets in Honolulu.  He specialized in Hawaiian herb treatments, drugless medicine and bloodless surgery.  He had branches on Maui and Hawai‘i Island, where he saw patients and mentored younger medical and lā‘au lapa‘au practitioners.

Dr. Ka‘ōnohi graduated from the Standard and National College of Drugless Naturopathic Physicians in Chicago with doctorate degrees in naturopathy and drugless medicine, and a masters in natural medicine.  He was also certified in pharmacy.

Dr. Ka‘ōnohi has been an inspiration to the Hawaiian health community for his holistic approach to healing and his commitment to mentoring others striving to serve the greater good.

Thus, Papa Ola Lōkahi has presented the Ka‘ōnohi Award to 64 individuals for their significant contributions to the health and well-being of Native Hawaiians and their families.

Learn more about Dr. Ka‘ōnohi in this 2011 video.

Hau‘oli Lā Hānau, Dr. Ka‘ōnohi!

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Papa Ola Lōkahi executive director Sheri-Ann Daniels and the directors of the five Native Hawaiian Health Care Systems are monitoring Hurricane Lane.  We are all taking precautions to assure our clients, patients, and employees are safe, and facilities are secured.

The cone generated by the projected path of Lane indicates all islands will be impacted from Thursday though Saturday.  Expect to experience intense showers and thunderstorms, flooding and high surf.  There is a high likelihood that we will all see winds of 40 MPH or higher.

A HURRICANE WARNING is currently in effect for the Island of Hawai‘i and Maui County, which includes Molokai, Lāna‘i and Kaho‘olawe. 

A HURRICANE WATCH is in effect for O‘ahu and Kaua‘i.

By Thursday, Papa Ola Lōkahi will be closed.  Hawai‘i Island has already cancelled its classes around the island, and the other NHHCSs are expected to announce adjusted hours for the rest of the week.  Please check their respective websites for updates.

• Hō‘ola Lāhui Hawai‘i, Kaua‘i
• Ke Ola Mamo, O‘ahu
• Nā Pu‘uwai, Molokai including Kalaupapa and Lāna‘i
• Hui No Ke Ola Pono, Maui including Hana
• Hui Mālama Ola nā ‘Ōiwi, Island of Hawai‘i

Other resources

• Central Pacific Hurricane Center
• National Weather Service
• Hawai‘i Emergency Management Agency

Your county office of civil defense will have a list of the emergency shelters on each island.

Be safe, stay informed, kōkua one another. 

Ke Akua pū

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